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Patients with SMA require a multidisciplinary care team

SMA progression and response to treatment may differ from patient to patient. Ongoing care is essential for the long-term health of people with SMA. A multidisciplinary care team can help identify and address any ongoing care needs a patient may have before, during, and long after patients start disease-modifying therapy.1

SEE THE LONG-TERM RESULTS OF GENE THERAPY FOR SMA

All patients with SMA need a specialized care team

Even after disease-modifying treatment, patients with SMA may need respiratory, nutritional, and musculoskeletal support. The team will vary from patient to patient, but a coordinated effort from a team of specialists can help monitor the patient’s progress.1,2

Experts in SMA care recommend that a pediatric neurologist or neuromuscular specialist, coordinate the care of the patient, as they will likely have the most experience with anticipating care needs.1

Ongoing care can include assessments of motor function, which may include regular sessions with a physical therapist. Additionally, nutritionists may be involved in monitoring weight and nutrient intake, paying careful attention to calcium and vitamin D for bone health.1

Members of the SMA care team may include1,2:

Members of the SMA care team may include:Neuromuscular and neurological specialists,respiratory specialists, musculoskeletalspecialists, nutritional and dietary specialists,and physical and occupational therapy
References: 1. Mercuri E, Finkel RS, Muntoni F, et al. Diagnosis and management of spinal muscular atrophy: part 1: recommendations for diagnosis, rehabilitation, orthopedic and nutritional care. Neuromuscul Disord. 2018;28(2):103-115. 2. Wang CH, Finkel RS, Bertini ES, et al; Participants of the International Conference on SMA Standard of Care. Consensus statement for standard of care in spinal muscular atrophy. J Child Neurol. 2007;22(8):1027-1049.